Parkinson Patients' needs during COVID-19 pandemic in a red zone: a Framework Analysis of Open-Ended Survey Questions.
Identifieur interne : 000249 ( Main/Exploration ); précédent : 000248; suivant : 000250Parkinson Patients' needs during COVID-19 pandemic in a red zone: a Framework Analysis of Open-Ended Survey Questions.
Auteurs : Francesco Cavallieri [Italie] ; Francesca Sireci [Italie] ; Valentina Fioravanti [Italie] ; Giulia Toschi [Italie] ; Vittorio Rispoli [Italie] ; Francesca Antonelli [Italie] ; Massimo Costantini [Italie] ; Luca Ghirotto [Italie] ; Franco Valzania [Italie]Source :
- European journal of neurology [ 1468-1331 ] ; 2021.
Abstract
OBJECTIVE
To investigate the perceptions, the feelings and the unmet needs of Parkinson's Disease (PD) patients who experienced a two-month lockdown in a "red zone" in the northern part of Italy during the COVID-19 outbreak.
METHODS
A descriptive design utilising cross-section online survey with open-ended questions enquiring the person's feelings concerning the risk of contracting Coronavirus, how their physical activity has changed, the needs related to Parkinson's disease which have not been meet during the pandemic period, their personal needs dictated by their condition, which had not been met in this pandemic period as compared to previous periods. Demographic data were analysed using descriptive frequencies, while the open-ended questions were analysed using thematic framework analysis.
RESULTS
The study included 103 participants [male/female: 63/40 (61.17 vs 38.83%)]. Framework analysis lead identification of four main themes: (i) fearing the risk of contracting coronavirus, (ii) the reduction of physical activity, (iii) perception of the risk of not being able to access outpatient clinics or support services, and (iv) the suffering from the important reduction in socialization. The perceptions of unmet needs appear to be higher than the experience particularly for the reduction of physical activity and the interrupting contacts with the neurologist and other specialists.
CONCLUSIONS
This study highlights how perceptions and actual experience shape the meaning of living with PD during the pandemic. Worth to note is the divergence between perceptions and real impact in some aspects of COVID-19 outbreak.
DOI: 10.1111/ene.14745
PubMed: 33460507
Affiliations:
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xml:lang="fr">Italie</country><wicri:regionArea>Neurology Unit, Neuromotor & Rehabilitation Department, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia</wicri:regionArea><wicri:noRegion>Reggio Emilia</wicri:noRegion></affiliation></author><author><name sortKey="Rispoli, Vittorio" sort="Rispoli, Vittorio" uniqKey="Rispoli V" first="Vittorio" last="Rispoli">Vittorio Rispoli</name><affiliation wicri:level="1"><nlm:affiliation>Neurology Neuroscience, Head and Neck Department, University of Modena and Reggio Emilia, Reggio Emilia, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Neurology Neuroscience, Head and Neck Department, University of Modena and Reggio Emilia, Reggio Emilia</wicri:regionArea><wicri:noRegion>Reggio Emilia</wicri:noRegion></affiliation></author><author><name sortKey="Antonelli, Francesca" sort="Antonelli, Francesca" uniqKey="Antonelli F" first="Francesca" last="Antonelli">Francesca Antonelli</name><affiliation wicri:level="1"><nlm:affiliation>Neurology Neuroscience, Head and Neck Department, University of Modena and Reggio Emilia, Reggio Emilia, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Neurology Neuroscience, Head and Neck Department, University of Modena and Reggio Emilia, Reggio Emilia</wicri:regionArea><wicri:noRegion>Reggio Emilia</wicri:noRegion></affiliation></author><author><name sortKey="Costantini, Massimo" sort="Costantini, Massimo" uniqKey="Costantini M" first="Massimo" last="Costantini">Massimo Costantini</name><affiliation wicri:level="1"><nlm:affiliation>Qualitative Research Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Qualitative Research Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia</wicri:regionArea><wicri:noRegion>Reggio Emilia</wicri:noRegion></affiliation></author><author><name sortKey="Ghirotto, Luca" sort="Ghirotto, Luca" uniqKey="Ghirotto L" first="Luca" last="Ghirotto">Luca Ghirotto</name><affiliation wicri:level="1"><nlm:affiliation>Qualitative Research Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Qualitative Research Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia</wicri:regionArea><wicri:noRegion>Reggio Emilia</wicri:noRegion></affiliation></author><author><name sortKey="Valzania, Franco" sort="Valzania, Franco" uniqKey="Valzania F" first="Franco" last="Valzania">Franco Valzania</name><affiliation wicri:level="1"><nlm:affiliation>Neurology Unit, Neuromotor & Rehabilitation Department, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Neurology Unit, Neuromotor & Rehabilitation Department, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia</wicri:regionArea><wicri:noRegion>Reggio Emilia</wicri:noRegion></affiliation></author></analytic><series><title level="j">European journal of neurology</title><idno type="eISSN">1468-1331</idno><imprint><date when="2021" type="published">2021</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>OBJECTIVE</b></p><p>To investigate the perceptions, the feelings and the unmet needs of Parkinson's Disease (PD) patients who experienced a two-month lockdown in a "red zone" in the northern part of Italy during the COVID-19 outbreak.</p></div><div type="abstract" xml:lang="en"><p><b>METHODS</b></p><p>A descriptive design utilising cross-section online survey with open-ended questions enquiring the person's feelings concerning the risk of contracting Coronavirus, how their physical activity has changed, the needs related to Parkinson's disease which have not been meet during the pandemic period, their personal needs dictated by their condition, which had not been met in this pandemic period as compared to previous periods. Demographic data were analysed using descriptive frequencies, while the open-ended questions were analysed using thematic framework analysis.</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>The study included 103 participants [male/female: 63/40 (61.17 vs 38.83%)]. Framework analysis lead identification of four main themes: (i) fearing the risk of contracting coronavirus, (ii) the reduction of physical activity, (iii) perception of the risk of not being able to access outpatient clinics or support services, and (iv) the suffering from the important reduction in socialization. The perceptions of unmet needs appear to be higher than the experience particularly for the reduction of physical activity and the interrupting contacts with the neurologist and other specialists.</p></div><div type="abstract" xml:lang="en"><p><b>CONCLUSIONS</b></p><p>This study highlights how perceptions and actual experience shape the meaning of living with PD during the pandemic. Worth to note is the divergence between perceptions and real impact in some aspects of COVID-19 outbreak.</p></div></front></TEI><pubmed><MedlineCitation Status="Publisher" Owner="NLM"><PMID Version="1">33460507</PMID><DateRevised><Year>2021</Year><Month>01</Month><Day>18</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1468-1331</ISSN><JournalIssue CitedMedium="Internet"><PubDate><Year>2021</Year><Month>Jan</Month><Day>18</Day></PubDate></JournalIssue><Title>European journal of neurology</Title><ISOAbbreviation>Eur J Neurol</ISOAbbreviation></Journal><ArticleTitle>Parkinson Patients' needs during COVID-19 pandemic in a red zone: a Framework Analysis of Open-Ended Survey Questions.</ArticleTitle><ELocationID EIdType="doi" ValidYN="Y">10.1111/ene.14745</ELocationID><Abstract><AbstractText Label="OBJECTIVE" NlmCategory="OBJECTIVE">To investigate the perceptions, the feelings and the unmet needs of Parkinson's Disease (PD) patients who experienced a two-month lockdown in a "red zone" in the northern part of Italy during the COVID-19 outbreak.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">A descriptive design utilising cross-section online survey with open-ended questions enquiring the person's feelings concerning the risk of contracting Coronavirus, how their physical activity has changed, the needs related to Parkinson's disease which have not been meet during the pandemic period, their personal needs dictated by their condition, which had not been met in this pandemic period as compared to previous periods. Demographic data were analysed using descriptive frequencies, while the open-ended questions were analysed using thematic framework analysis.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">The study included 103 participants [male/female: 63/40 (61.17 vs 38.83%)]. Framework analysis lead identification of four main themes: (i) fearing the risk of contracting coronavirus, (ii) the reduction of physical activity, (iii) perception of the risk of not being able to access outpatient clinics or support services, and (iv) the suffering from the important reduction in socialization. The perceptions of unmet needs appear to be higher than the experience particularly for the reduction of physical activity and the interrupting contacts with the neurologist and other specialists.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">This study highlights how perceptions and actual experience shape the meaning of living with PD during the pandemic. Worth to note is the divergence between perceptions and real impact in some aspects of COVID-19 outbreak.</AbstractText><CopyrightInformation>This article is protected by copyright. All rights reserved.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Cavallieri</LastName><ForeName>Francesco</ForeName><Initials>F</Initials><Identifier Source="ORCID">https://orcid.org/0000-0001-5836-1982</Identifier><AffiliationInfo><Affiliation>Neurology Unit, Neuromotor & Rehabilitation Department, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Clinical and experimental Medicine PhD Program, University of Modena and Reggio Emilia, Modena, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Sireci</LastName><ForeName>Francesca</ForeName><Initials>F</Initials><AffiliationInfo><Affiliation>Neurology Unit, Neuromotor & Rehabilitation Department, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Fioravanti</LastName><ForeName>Valentina</ForeName><Initials>V</Initials><AffiliationInfo><Affiliation>Neurology Unit, Neuromotor & Rehabilitation Department, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Toschi</LastName><ForeName>Giulia</ForeName><Initials>G</Initials><AffiliationInfo><Affiliation>Neurology Unit, Neuromotor & Rehabilitation Department, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Rispoli</LastName><ForeName>Vittorio</ForeName><Initials>V</Initials><AffiliationInfo><Affiliation>Neurology Neuroscience, Head and Neck Department, University of Modena and Reggio Emilia, Reggio Emilia, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Antonelli</LastName><ForeName>Francesca</ForeName><Initials>F</Initials><AffiliationInfo><Affiliation>Neurology Neuroscience, Head and Neck Department, University of Modena and Reggio Emilia, Reggio Emilia, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Costantini</LastName><ForeName>Massimo</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Qualitative Research Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ghirotto</LastName><ForeName>Luca</ForeName><Initials>L</Initials><Identifier Source="ORCID">https://orcid.org/0000-0001-7632-1271</Identifier><AffiliationInfo><Affiliation>Qualitative Research Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Valzania</LastName><ForeName>Franco</ForeName><Initials>F</Initials><AffiliationInfo><Affiliation>Neurology Unit, Neuromotor & Rehabilitation Department, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2021</Year><Month>01</Month><Day>18</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Eur J Neurol</MedlineTA><NlmUniqueID>9506311</NlmUniqueID><ISSNLinking>1351-5101</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">COVID-19; needs</Keyword><Keyword MajorTopicYN="N">Parkinson’s Disease</Keyword><Keyword MajorTopicYN="N">qualitative analysis</Keyword><Keyword MajorTopicYN="N">qualitative research</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="entrez"><Year>2021</Year><Month>1</Month><Day>18</Day><Hour>17</Hour><Minute>6</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2021</Year><Month>1</Month><Day>19</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2021</Year><Month>1</Month><Day>19</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>aheadofprint</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">33460507</ArticleId><ArticleId IdType="doi">10.1111/ene.14745</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Italie</li></country></list><tree><country name="Italie"><noRegion><name sortKey="Cavallieri, Francesco" sort="Cavallieri, Francesco" uniqKey="Cavallieri F" first="Francesco" last="Cavallieri">Francesco Cavallieri</name></noRegion><name sortKey="Antonelli, Francesca" sort="Antonelli, Francesca" uniqKey="Antonelli F" first="Francesca" last="Antonelli">Francesca Antonelli</name><name sortKey="Cavallieri, Francesco" sort="Cavallieri, Francesco" uniqKey="Cavallieri F" first="Francesco" last="Cavallieri">Francesco Cavallieri</name><name sortKey="Costantini, Massimo" sort="Costantini, Massimo" uniqKey="Costantini M" first="Massimo" last="Costantini">Massimo Costantini</name><name sortKey="Fioravanti, Valentina" sort="Fioravanti, Valentina" uniqKey="Fioravanti V" first="Valentina" last="Fioravanti">Valentina Fioravanti</name><name sortKey="Ghirotto, Luca" sort="Ghirotto, Luca" uniqKey="Ghirotto L" first="Luca" last="Ghirotto">Luca Ghirotto</name><name sortKey="Rispoli, Vittorio" sort="Rispoli, Vittorio" uniqKey="Rispoli V" first="Vittorio" last="Rispoli">Vittorio Rispoli</name><name sortKey="Sireci, Francesca" sort="Sireci, Francesca" uniqKey="Sireci F" first="Francesca" last="Sireci">Francesca Sireci</name><name sortKey="Toschi, Giulia" sort="Toschi, Giulia" uniqKey="Toschi G" first="Giulia" last="Toschi">Giulia Toschi</name><name sortKey="Valzania, Franco" sort="Valzania, Franco" uniqKey="Valzania F" first="Franco" last="Valzania">Franco Valzania</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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